I did my instalations of DHE 5 of them over the past few weeks... They are so difficult to tolerate. When they start the infusion my chest tightens and my heart rate picks up to an extreme ex: from 75 before to 145 after... It feels as if little bees are stinging me all inside my esophogaus. After this passes the sudden urge to puke comes over me ... usually followed by vomitting for about 15 min. AFTER that passes I pass out and sleep solid for 8 hrs which NEVER happens for me or at least hasn't in a very long time. I have put my heart into these treatments but I find after I only feel better for a day or so then its back to a banshee eating myface off. Which as un plesant as the DHE IVS are the "headaches" are 100 times worse. I wish there were words to desribe what this pain feels like...but here it goes I am going to try. It starts like a kink in my neck within seconds the kink is followed by a hot flash .... like my skin is on fire type of hot flash... next comes the REAL PAIN... Imagine for one second needles being lined up into three big lines across your face one above your right eye... one below your right eye and down into your nose and another along your lower right jaw into your bottom lip. NOW IMAGINE THESE NEEDLES BEING JAMMED IN & OUT OUT OF YOUR HEAD AT LIGHTNING SPEED. THIS CAN GO ON FOR ABOUT 4hrs to 4 days beore medication breaks it... but I have had this almost everyday for 31 days. Idon't want sympathy I just want an answer... something to help me have my life back. I have tried hundreds of medications & been to world renound hospitals someone somewhere has to have beenthrough something similar right!?! I've taken test 800 question test to make sure I am not crazy... and I passed ... wasnot even depressed because I know there is this amazing life out there I just have to get back to it!
I've be diagnosied with 3 diff. things. 1.) Trigeminal Neuralgia... 2.) Chronic Migraines (or status migraines) 3.) sceleroderma (this was most recent) ... I get test results back soon.... Well I had the Brain surgery for the trigeminal neuralgia once ... loss of hearing in my right ear & my head shaved .... and in the ICU for 4 days.... SOOOO NOT A BIG RUSH to TRY THAT AGAIN... UGHHHHHHHH HOW DID EVERYTHING GET SOOOO MEsSED UP. I HAD 3 months pain free when I moved to AZ then the weather changed.. come on weather get hot & dry again.... MONDAY I GO IN FOR ANOTHER SURGICAL NERVE BLOCK>> PRAY TO WHATEVER OR WHOMEVER YOU PRAY TO... THANKS>>> TO MY TWO FOLLOWERS LOL :)
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Hang in there! I know people tell you that all the time. I know you just want to rip their faces off and tell them that you are in fact, "hanging in there". Use every ounce of faith and look deep inside yourself for the power to get rid of this retched thing that has taken over your body. I believe you'll find the answer sooner than later. I'll be thinking about you. Keep me updated!
ReplyDeleteLook into nerve decompression surgery. Www.mydaughtersheadache.com.
ReplyDeleteDHE was a nightmare for my daughter. After that, we learned about this surgical option, she got her life back!